RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang ka Cong Fang, Shijian Luo and Jingzhao Pan

Moralo oa RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang ka Cong Fang, Shijian Luo and Jingzhao Pan ke mohlodi oa khau e hlomphehang haholo ya 2021 Moputso oa Boronse oa A' Design Award Mokhahleong oa Tlhodisano oa Moralo wa Theknoloji ya Mehala, Diaplikeishene le Softwere.

BoronseMohala· 2021

RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang

ka Cong Fang, Shijian Luo and Jingzhao Pan

Moreki: Zhejiang University

Mohlodi oa Moputso oa Boronse oa A' Design Award Mokhahleong oa Mohala

16,439

Mohlodi oa Khau ea Netefaditsweng

Netefatsa Boemo ba Khau bakeng sa #111937

Sheba ho A' Design Award Tokollo ya Boraditaba Baeche ya Moputso

Mebala

Moralo

Mabapi le RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang

Mongolo oa Buka: RareMe ke application ea mehala e tsamaeang bakeng sa batho ba angoang ke maloetse a fumanoang ka seoelo. RareMe e hokahanya bakuli le malapa a bona le lipetlele, litsi tsa bongaka, li-pharmacy, lingaka le bahlophisi ba lithethefatsi. Basebelisi ba khetha karolo joalo ka mokuli, setho sa lelapa, kapa mofani oa tlhokomelo ea bophelo bo botle nakong ea ngoliso. Bakuli ba ka ngola lingolo tsa letsatsi le letsatsi mabapi le kalafo ea bona, ba batla meriana le kalafo lefatšeng ka bophara, mme ba fumane basebelisi ba bang ba nang le maemo a tšoanang ka ho sebelisa algorithm ea likhothaletso. Application ena e fumaneha ho iOS le Android. Sepheo ke ho fa bakuli ba nang le maloetse a fumanoang ka seoelo tlhokomelo le hlokomeliso e lekanang le ea batho ba bang.

Kamohelo

Mabapi le Moputso oa Boronse oa A' Design Award

RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang ke mohapi oa Moputso oa Boronse oa A' Design Award, kananelo e hlomphehang haholo e fuoang meralo e ikhethang e tsejoang ka boqapi, bohlale ba ho qapa le bohlale. Bahapi ba Boronse ke lintho tse nang le bokhoni ka ho felletseng le boqapi bo hlollang tse tiisang boiphihlelo bo bongata, mohopolo le bokhoni ba ho iphumana ba baqapi ba tsona. RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang e lebelletsoe ho ba ntho e hlomphuoang haholo, e ratoang le e ratehang, e nang le boprofeshenale bo bonahalang le mehopolo e mecha. Moralo ona o hapileng Moputso oa Boronse oa A' Design Award o kenyelletsa mekhoa e metle ka ho fetesisa bonong, mahlaleng, moralong le theknolojing mme o hlahella ka ho tsepamisa maikutlo lintlheng tse nyenyane. RareMe Mosebetsi oa Mantlha: Application ea Mehala e Tsamaeang e kutloisisa litlhoko hantle, e ama litakatso, e hapa maikutlo mme e tsosa takatso ea ho tseba.

Ka Mora Moralo

Sete ya Boraditaba

Litlhaku, ditho tsa sehlopha le lintlha tsa botekgeniki tse fanoeng ke moetsi wa moralo.

Boleng bo Ikhethang: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Boholo le Phuthelo: Launched on IOS and Android
Lithegi: Rare Disease, app, patients, crowd-funding, mutual aid
Theknoloji ya Tlhahiso: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Phephetso ya Moralo: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Dipatlisiso: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Kgothaletso: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Nako ya Projeke: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Tsamaiso ya Mosebetsi: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Litho tsa Sehlopha: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Litlotla tsa Setshwantsho: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo