Cong Fang, Shijian Luo and Jingzhao Pan ᱨᱮᱱᱟᱜ RareMe Mobile Application (ᱢᱚᱵᱟᱭᱤᱞ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ) ᱫᱚ ᱢᱚᱵᱟᱭᱤᱞ ᱯᱨᱚᱛᱤᱡᱚᱜᱤᱛᱟ ᱵᱷᱟᱜ ᱨᱮ 2021 A' Design Award ᱠᱟᱥᱟ ᱯᱩᱨᱚᱥᱠᱟᱨ ᱨᱮᱱᱟᱜ ᱟᱹᱰᱤ ᱢᱟᱱ ᱟᱠᱟᱱ ᱡᱤᱛᱠᱟᱨ ᱠᱟᱱᱟ᱾
ᱠᱟᱥᱟᱢᱚᱵᱟᱭᱤᱞ· 2021
RareMe Mobile Application (ᱢᱚᱵᱟᱭᱤᱞ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ)
Cong Fang, Shijian Luo and Jingzhao Pan ᱞᱮᱠᱟᱛᱮ
ᱜᱟᱦᱟᱠ: Zhejiang University
ᱢᱚᱵᱟᱭᱤᱞ ᱵᱷᱟᱜ ᱨᱮ A' Design Award ᱠᱟᱥᱟ ᱯᱩᱨᱚᱥᱠᱟᱨ ᱡᱤᱛᱠᱟᱨ
ᱡᱟᱸᱪ ᱟᱠᱟᱱ ᱮᱣᱟᱨᱰ ᱡᱤᱛᱠᱟᱨ
#111937 ᱞᱟᱜᱤᱫ ᱮᱣᱟᱨᱰ ᱦᱟᱞᱚᱛ ᱡᱟᱸᱪᱰᱤᱡᱟᱭᱤᱱ
RareMe Mobile Application (ᱢᱚᱵᱟᱭᱤᱞ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ) ᱵᱟᱵᱚᱛ ᱛᱮ
RareMe ᱮᱴᱟᱜ ᱢᱤᱫ ᱢᱚᱵᱟᱭᱤᱞ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ ᱠᱟᱱᱟ ᱚᱠᱟ ᱡᱟᱦᱟᱱ ᱦᱚᱲ ᱠᱚ ᱨᱮᱨᱮ ᱨᱚᱜᱚᱤ ᱠᱚ ᱠᱚ ᱫᱟᱲᱮᱭᱟᱜᱼᱟ ᱚᱱᱟ ᱠᱚ ᱞᱟᱹᱜᱤᱫ ᱠᱟᱱᱟ ᱾ RareMe ᱨᱚᱜᱤ ᱠᱚ ᱟᱨ ᱟᱡ ᱚᱱᱠᱚᱨᱮᱱ ᱦᱚᱲ ᱠᱚ ᱥᱟᱶᱛᱮ ᱚᱥᱯᱤᱛᱟᱞ, ᱢᱮᱰᱤᱠᱮᱞ ᱥᱚᱢᱟᱡᱽ ᱠᱚ, ᱯᱷᱟᱨᱢᱮᱥᱭᱩ, ᱰᱟᱠᱛᱚᱨ ᱟᱨ ᱫᱟᱨᱩ ᱛᱮᱭᱟᱨ ᱠᱚ ᱥᱟᱶᱛᱮ ᱡᱩᱲᱟᱹᱣᱤᱭᱟ ᱾ ᱯᱟᱱᱛᱮ ᱚᱞ ᱚᱠᱛᱚ ᱨᱮ ᱵᱮᱵᱚᱦᱟᱨᱤᱭᱟᱹ ᱠᱚ ᱢᱤᱫ ᱨᱚᱞ ᱵᱟᱪᱷᱟᱣᱭᱟᱭ ᱡᱟᱦᱟᱱ ᱪᱮᱫ ᱠᱚ ᱨᱚᱜᱤ, ᱟᱡ ᱚᱱᱠᱚᱨᱮᱱ ᱦᱚᱲ ᱟᱨᱵᱟᱝ ᱥᱚᱛᱟᱢ ᱥᱮᱵᱟ ᱫᱟᱛᱟ ᱠᱚ ᱾ ᱨᱚᱜᱤ ᱠᱚ ᱟᱭᱢᱟ ᱫᱟᱨᱢᱟᱱ ᱠᱚ ᱪᱮᱛᱟᱱ ᱚᱞ ᱫᱟᱲᱮᱭᱟᱜ ᱦᱩᱭᱩᱜ ᱠᱚ ᱛᱟᱦᱮᱸ ᱨᱮᱭᱟᱜ, ᱫᱩᱱᱤᱭᱟᱼᱵᱷᱚᱨ ᱫᱟᱨᱩ ᱟᱨ ᱫᱟᱲᱮᱭᱟᱜ ᱠᱚ ᱥᱮᱸᱫᱽᱨᱟᱭ, ᱟᱨ ᱮᱴᱟᱜ ᱡᱮᱢᱚᱱ ᱨᱚᱜ ᱠᱚ ᱠᱟᱛᱷᱟ ᱥᱟᱶᱛᱮ ᱮᱴᱟᱜ ᱵᱮᱵᱚᱦᱟᱨᱤᱭᱟᱹ ᱠᱚ ᱚᱱᱚᱞ ᱦᱩᱭᱩᱜ ᱠᱚ ᱧᱟᱢᱮᱭᱟ ᱢᱤᱫ ᱨᱮᱠᱚᱢᱮᱱᱰᱮᱥᱚᱱ ᱮᱞᱜᱚᱨᱤᱫᱚᱢ ᱛᱮᱭᱟᱜ ᱫᱟᱵᱽ ᱨᱮ ᱾ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ ᱱᱚᱶᱟ iOS ᱟᱨ Android ᱨᱮ ᱢᱮᱴᱟᱣ ᱠᱟᱱᱟ ᱾ ᱞᱟᱹᱜᱤᱫ ᱠᱟᱱᱟ ᱨᱮᱨᱮ ᱨᱚᱜᱚᱤ ᱠᱚ ᱮᱴᱟᱜ ᱡᱮᱢᱚᱱ ᱡᱚᱜᱟᱲ ᱚᱱᱚᱞ ᱚᱠᱛᱚ ᱟᱨ ᱫᱮᱠᱷᱟᱨᱮᱠᱷ ᱮᱢᱚᱜ ᱞᱟᱹᱜᱤᱫ ᱾
ᱢᱟᱱᱟᱱ
A' Design Award ᱠᱟᱥᱟ ᱯᱩᱨᱚᱥᱠᱟᱨ ᱵᱟᱵᱚᱛ ᱛᱮ
RareMe Mobile Application (ᱢᱚᱵᱟᱭᱤᱞ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ) ᱫᱚ A' Design Award ᱠᱟᱥᱟ ᱯᱩᱨᱚᱥᱠᱟᱨ ᱧᱟᱢ ᱟᱠᱟᱱᱟ, ᱱᱚᱶᱟ ᱫᱚ ᱱᱟᱣᱟ ᱵᱷᱟᱵᱱᱟ ᱛᱮ ᱵᱷᱟᱞᱟᱭ ᱰᱤᱡᱟᱭᱤᱱ ᱠᱚ ᱞᱟᱹᱜᱤᱫ ᱮᱢ ᱟᱠᱟᱱ ᱥᱚᱢᱟᱱ ᱠᱟᱱᱟ᱾ ᱱᱚᱶᱟ ᱠᱚ ᱫᱚ ᱰᱤᱡᱟᱭᱤᱱᱟᱨ ᱠᱚ ᱨᱮᱭᱟᱜ ᱵᱷᱟᱵᱱᱟ ᱟᱨ ᱵᱷᱟᱞᱟᱭ ᱠᱟᱢᱤ ᱡᱷᱟᱞᱠᱟᱣ ᱠᱚ᱾ RareMe Mobile Application (ᱢᱚᱵᱟᱭᱤᱞ ᱮᱯᱞᱤᱠᱮᱥᱚᱱ) ᱫᱚ ᱠᱚᱞᱟ, ᱣᱤᱜᱭᱟᱱ, ᱰᱤᱡᱟᱭᱤᱱ ᱟᱨ ᱴᱮᱠᱱᱚᱞᱚᱡᱤ ᱨᱮᱭᱟᱜ ᱥᱤᱢᱟ ᱵᱟᱲᱦᱟᱣ ᱟᱨ ᱫᱩᱱᱤᱭᱟ ᱵᱷᱟᱞᱟᱭ ᱞᱟᱹᱜᱤᱫ ᱜᱚᱲᱚ ᱮᱢ ᱠᱟᱱᱟ᱾
ᱰᱤᱡᱟᱭᱤᱱ ᱯᱤᱪᱷᱟ ᱨᱮ
ᱯᱨᱮᱥ ᱠᱤᱴ
ᱰᱤᱡᱟᱭᱤᱱᱟᱨ ᱧᱮᱞ ᱠᱷᱚᱱ ᱠᱨᱮᱰᱤᱴ, ᱴᱤᱢ ᱥᱫᱚᱥᱭ ᱟᱨ ᱴᱮᱠᱱᱤᱠᱮᱞ ᱵᱤᱵᱚᱨᱚᱬ ᱮᱢ ᱟᱠᱟᱱᱟ᱾
- ᱟᱞᱜᱟ ᱜᱩᱱ ᱠᱚ
- Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
- ᱢᱟᱯ ᱟᱨ ᱯᱮᱠᱮᱡᱤᱝ
- Launched on IOS and Android
- ᱴᱮᱜ ᱠᱚ
- Rare Disease, app, patients, crowd-funding, mutual aid
- ᱛᱮᱭᱟᱨ ᱛᱮᱠᱱᱚᱞᱚᱡᱤ
- RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
- ᱰᱤᱡᱟᱭᱱ ᱪᱮᱞᱮᱧ
- RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.
The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding. - ᱜᱚᱵᱮᱥᱚᱱᱟ
- Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.
Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future. - ᱯᱨᱮᱨᱚᱱᱟ
- Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
- ᱯᱨᱚᱡᱮᱠᱴ ᱥᱚᱢᱚᱭ
- This project started in September 2019 in Hangzhou, China, and it is still under developing.
- ᱠᱟᱹᱢᱤ ᱦᱚᱨ
- At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
- ᱴᱤᱢ ᱥᱮᱫᱟᱭ ᱠᱚ
- Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin - ᱪᱤᱛᱟᱹᱨ ᱥᱟᱹᱦᱟ
- The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo
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