RareMe Whakamahinga Matua: Taupānga Pūkoro nā Cong Fang, Shijian Luo and Jingzhao Pan

Ko te hoahoa RareMe Whakamahinga Matua: Taupānga Pūkoro nā Cong Fang, Shijian Luo and Jingzhao Pan he kaitoa whakahirahira o te 2021 A' Design Award Parahi i te Wāhanga Whakataetae Hoahoa Hangarau Pūkoro, Tono me te Pūmanawa.

ParahiPūkoro· 2021

RareMe Whakamahinga Matua: Taupānga Pūkoro

nā Cong Fang, Shijian Luo and Jingzhao Pan

Kiritaki: Zhejiang University

Kaitoa o te A' Design Award Parahi i te Wāhanga Pūkoro

16,439

Kaitoa Tohu Manatokohia

Manatokohia te Tūnga Tohu mō #111937

Tirohia i te A' Design Award Pānui Pāpāho Tohu Tohu

Ngā Tae

Te Hoahoa

Mō RareMe Whakamahinga Matua: Taupānga Pūkoro

Ko RareMe he taupānga pūkoro mō ngā tāngata e pāngia ana e ngā mate onge. Ka hono a RareMe i ngā tūroro me ō rātou whānau ki ngā hōhipera, ngā whakahaere hauora, ngā whare rongoā, ngā rata me ngā kaiwhakawhanake rongoā. Ka whiriwhiri ngā kaiwhakamahi i tētahi tūranga hei tūroro, hei mema whānau, hei kaiwhakarato hauora rānei i te wā e rēhita ana. Ka taea e ngā tūroro te tuhi rātaka mō tā rātou maimoatanga, te rapu rongoā me ngā maimoatanga huri noa i te ao, me te kimi i ētahi atu kaiwhakamahi he ōrite ngā āhuatanga mā tētahi hātepe tūtohu. Kei runga te taupānga i te iOS me te Android. Ko te whāinga kia rite tonu te aro me te manaaki mō ngā tūroro mate onge.

Te Whakamihi

Mō te A' Design Award Parahi

Ko RareMe Whakamahinga Matua: Taupānga Pūkoro te toa o te A' Design Award Parahi, he whakaaetanga tino whai mana e hoatu ana ki ngā hoahoa kōeke e tohua ana mā te auaha, te mahi mōhio me te whakaaro hōhonu. Ko ngā toa Parahi he mahi pukenga e rite ana, he auaha mīharo, e whakatūturu ana i te wheako nui, te whakaaro me te mōhio-ā-ringa o ā rātou kaihoahoa. E tūmanakohia ana ko RareMe Whakamahinga Matua: Taupānga Pūkoro he taonga whakanuia, whakamīharotia, aroha nui, he ngaio, he auaha hoki. Ko tēnei hoahoa i toa i te Parahi e whakauru ana i ngā tikanga pai rawa i te toi, te pūtaiao, te hoahoa me te hangarau, ā, he tino mīharo ki ngā taipitopito. Ka whakatutuki a RareMe Whakamahinga Matua: Taupānga Pūkoro i ngā hiahia, ka pā ki ngā hiahia, ka whakaoho i ngā kare-ā-roto, ā, ka kume i te pākiki.

I Muri i te Hoahoa

Kete Pāpāho

Ngā whakamihi, ngā mema o te rōpū me ngā taipitopito hangarau i whakaratohia e te kaihoahoa.

Āhuatanga Motuhake: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Inenga & Pēketanga: Launched on IOS and Android
Tūtohu: Rare Disease, app, patients, crowd-funding, mutual aid
Hangarau Whakanao: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Wero Hoahoa: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Rangahau: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Whakaaweawe: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Roanga o te Kaupapa: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Rerenga Mahi: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Ngā Mema o te Rōpū: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Whakamana Whakaahua: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo